You've Gotta Have Heart: Achieving Purpose Beyond Profit in the Social Sector - Original PDF
نویسندگان: Cass Wheeler
خلاصه: When Jeannie was born in February 1986, she was to be immedi- ately given up for adoption. But because she had a serious heart defect and other medical issues, her adoptive parents-to-be backed out. A second family, the Bornemanns, claimed Jeannie as their daugh- ter. They saw her for the first time when she was just three days old. She had IVs in her head, chest, and both hands and feet, and she had tubes in her nose. Their first words were “Hi, teeny Jeannie! Mommy and Daddy are here!” Jeannie had an extremely rare set of conditions—transposition of the great vessels, pulmonary stenosis, and a ventricular septal defect. Her heart’s chambers and arteries were reversed. Not much was known about this condition then—more research was desperately needed. Jeannie’s doctors inserted a flexible tube called a shunt to increase blood flow. It was all they could do. They hoped that she would get big- ger and stronger and that research would provide new knowledge and tools to help them help her. Jeannie didn’t grow normally. When she was 5, she weighed just 22 pounds and was 29 inches tall. But she was finally strong enough for the corrective surgery that doctors had been waiting to do. Jeannie’s quality of life improved a lot after her surgery. She went to school, played T-ball and soccer, and followed her medical instructions without complaint. Despite a severe hearing impairment, she became a fanatic music lover, especially the music of Elvis. She loved people and life and looked like any other normal, healthy kid—except she was hearing impaired, legally blind, and undersized and had a heart defect. In 1999, at age 13, Jeannie was looking forward to spending a week at a special camp. It was a place where kids with heart disease could make friends, share experiences, and enjoy hiking, fishing, horseback riding, making crafts, and singing around the campfire—while being supervised by doctors, nurses, and other volunteer camp counselors. Swimming was a favorite activity, because, since all the kids have sur- gical scars, no one is embarrassed—they even compare scars! The day before camp started, Jeannie fell from a tree, breaking her collarbone. She was undaunted and still went to camp. By the next year, Jeannie’s health had begun to decline. Research advances offered new hope, and Jeannie’s cardiologist proposed a heart transplant. Her parents were afraid—but not Jeannie. On the night before she was set to go back to camp, the call came. A heart was available. Jeannie missed camp that year but got her new heart. Jeannie had severe complications after her transplant. She spent thirteen of the next thirty-six months in the hospital. Between hospital stays, she lived the fullest life she could, singing on stage in high school, acting with a performing arts group, going to two homecoming dances, and traveling. When she was 17, Jeannie got very sick and again went to the hospi- tal. While she was there, she wrote a short note about the fun she’d had at camp: making friends, doing crafts, hearing silly jokes, and singing a song that ended like this: When the bugs bite, when the bees sting, when I’m feeling sad, I simply remember my Boggy Creek things, and then I don’t feel so bad.